Jessica Roydhouse, Menzies Institute for Medical Research

Brittany Lapin, Cleveland Clinic

This special collection focuses on the Limb Injury Measurement Battery for Quality of Life (LIMB-QOL), a comprehensive patient-reported outcome system designed to assess multiple dimensions of functioning in individuals with limb loss and severe extremity trauma. The LIMB-QOL system addresses physical, emotional, and social aspects of health and was developed through a major collaborative initiative supported by the U.S. Department of Defense.

The collection welcomes foundational research manuscripts that introduce the LIMB-QOL measurement system to the scientific and clinical communities. Submissions should contribute to understanding the development, implementation, and application of this measurement system for evaluating outcomes in individuals experiencing major extremity injuries.

Appel publié par Quality of Life Research. Voir l'appel sur le site de l'éditeur. Fiche de l'appel sur kerostig.

Potential topics

• Patient-reported outcomes for limb loss and extremity trauma
• Physical, emotional, and social health domains in limb injury
• Development and validation of quality of life measurement systems
• Implementation of LIMB-QOL in clinical research and practice
• Orthotic and prosthetic device satisfaction measurement
• Methodological approaches to outcome measurement in extremity injuries

Timeline

• Invalid DateTime: Submission deadline

Brittany Lapin, Cleveland Clinic

Jessica Roydhouse, Menzies Institute for Medical Research

The EQ-DAPHNIE project, funded by the EuroQol Research Foundation, conducted a comprehensive population health assessment across 15 countries, collecting demographic data, social determinants of health, and diverse patient-reported outcome measures. This special collection brings together research examining the findings from this initiative.

Appel publié par Quality of Life Research. Voir l'appel sur le site de l'éditeur. Fiche de l'appel sur kerostig.

Potential topics

• Establishment of population norms for patient-reported outcome measures (PROMs)
• Cross-country comparisons of health measures
• Examination of health inequalities across populations
• Assessment of instrument performance within and across countries
• Self-reported health measures and analysis
• Efficacy of different measures in elderly populations
• Evaluation of generic and symptom-specific PROMs

Timeline

• Invalid DateTime: Submission deadline

Wen-Hung Chen, AstraZeneca

Lori D. McLeod, RTI Health Solutions

Regulatory and health technology assessment bodies increasingly recognize the value of incorporating patient perspectives during product development and evaluation. Patient experience data encompasses patient-reported outcomes, clinical assessments, and preference information, yet their integration into decision-making remains inconsistent. This collection seeks to advance understanding of how different stakeholders approach patient experience data to ensure patient voices meaningfully influence healthcare decisions.

The collection invites original research, reviews, and discussion papers examining how patient experience data—including preferences, symptoms, and quality of life measures—can inform regulatory and HTA submissions and decisions. Contributions addressing recent developments in the field and exploring emerging applications such as artificial intelligence and digital health technologies in patient experience research are particularly encouraged.

Appel publié par Quality of Life Research. Voir l'appel sur le site de l'éditeur. Fiche de l'appel sur kerostig.

Potential topics

• Assessment of patient experience, preferences, symptoms, and health-related quality of life for regulatory and HTA submissions
• Patient-reported outcomes and clinical outcome assessments in product development and evaluation
• Patient preference information collection and evaluation
• Artificial intelligence and digital health technology applications in patient experience data research
• Regulatory and HTA developments and decision-making processes
• Integration of patient voices in healthcare decisions to improve patient outcomes

Timeline

• June 30, 2027: Submission deadline